A 29-year-old woman will die without a new drug that the NHS is refusing to provide despite the manufacturer offering it to her for free, it emerged today.

Caroline Cassin, 29, who suffers from Cystic Fibrosis (CF) has been offered a new drug free of charge for a limited period by the makers but her NHS hospital is refusing.

Her family say she will die soon without it, yet managers at Heartlands Hospital in Birmingham say it would be unethical to provide the drug under the deal, only for it to be withdrawn later.

The drug, Kalydeco also known as ivacaftor, costs £182,000 per patient per year, and works for five per cent of people with CF who have a certain defective gene, around 270 people in England.

From “Cystic Fibrosis sufferer denied ‘chance of life’ drug by NHS,” The Telegraph, Monday, October 29, 2012.

This is the kind of thing that can happen when the government gets the power to decide on our medical care.

One thing that the article doesn’t make clear, though, is why she needs the National Health Service’s cooperation at all. Can anyone explain?