
Bill Clinton famously told voters: “I feel your pain.” Although I now look back on the Clinton years rather fondly, I suspect that even his strongest supporters would not view his soulful empathy as anything more than an act. The government does not feel your pain. The FDA does not feel your pain. Doctors and nurses do not feel your pain.
You feel your pain.
Consider this recent FT story:
But when the procedure began, Czar was still alert and gripped by intense pain. “I remember saying ‘I feel everything’ and nobody believed me.”
The new podcast The Retrievals hears from a dozen women who had the same procedure at the Yale Fertility Center and who all reported extreme pain throughout. At the time they were told by staff they had been given the maximum amount of pain relief, meaning they couldn’t have more. However, it later transpired that a nurse at the clinic had been stealing fentanyl and replacing it with saline solution. It is thought that 200 patients had been denied pain relief during egg retrievals over a period of five months. . . .
I doubt there will be a woman listening who does not recognise elements of this story: of medical professionals underplaying their pain, or rushing them as they explain symptoms, or being made to feel weak, hysterical or unreliable witnesses to their own experience.
Nobody believed them? All 200 patients? I’d be really annoyed.
There’s a perception that people have different tolerances for pain. And yet I’ve never seen a shred of evidence for that claim. No one can truly know what another person is feeling. There are lots of things that other people find painful that don’t bother me at all. But that doesn’t mean I have a high tolerance for pain. There are other things that bother me more than they bother other people. We’re all wired differently; we experience the world in different ways. I have no idea what it feels like to be you.
Here’s Scott Alexander, criticizing the fact that our medical establishment refuses to take reports of pain seriously:
This paper lists signs of drug-seeking behavior that doctors should watch out for, like:
– Aggressively complaining about a need for a drug
– Requesting to have the dose increased
– Asking for specific drugs by name
– Taking a few extra, unauthorised doses on occasion
– Frequently calling the clinic
– Unwilling to consider other drugs or non-drug treatments
– Frequent unauthorised dose escalations after being told that it is inappropriate
– Consistently disruptive behaviour when arriving at the clinicYou might notice that all of these are things people might do if they actually need the drug. . . .
Greene & Chambers present this as some kind of exotic novel hypothesis, but think about this for a second like a normal human being. You have a kid with a very painful form of cancer. His doctor guesses at what the right dose of painkillers should be. After getting this dose of painkillers, the kid continues to “engage in pain behaviors ie moaning, crying, grimacing, and complaining about various aches and pains”, and begs for a higher dose of painkillers.
I maintain that the normal human thought process is “Since this kid is screaming in pain, looks like I guessed wrong about the right amount of painkillers for him, I should give him more.”
The official medical-system approved thought process, which Greene & Chambers are defending in this paper, is “Since he is displaying signs of drug-seeking behavior, he must be an addict trying to con you into giving him his next fix.”
Here’s the NYT:
How does it feel to suffer from debilitating pain but not be able to get your hands on the medication that could help? In the Opinion video above, we hear from Americans who have had to endure this nightmare.
They are among the countless people with chronic pain who have been the unintended victims of the national crackdown on opioid prescribing. In response to the deadly opioid crisis, the Centers for Disease Control and Prevention issued guidelines intended to limit opioid prescriptions. That advice soon became enshrined in state laws across the country. Suddenly, many pain patients lost the drugs that made their lives bearable. Some sought relief in suicide.
Last year the C.D.C. issued new prescription guidelines intended, in part, to induce a course correction. But facing a confusing mess of federal and state laws, many physicians are still afraid to prescribe opioids to genuine pain sufferers.
Critics of utilitarianism often point to thought experiments: “What if a certain social goal could only be achieved by torturing thousands of innocent people.” I guess the idea is to show that the policy in question is obviously abhorrent, even if it were to pass some sort of utilitarian cost-benefit test.
In this case, you cannot even justify these rules by pointing to gains in other areas. The crackdown on pain relief had a negative effect even if you put zero weight on all of the suffering of people denied pain relief by doctors. That’s because the crackdown on opioid prescriptions in the early 2010s led to an enormous surge in the use of illegal alternatives such as fentanyl. The annual death toll from these illegal substitutes is now an order of magnitude higher than a decade ago.
The ideology of paternalism is based on the idea that the government understands your interests better than you do. There are undoubtedly cases where that assumption is correct. But on average? When children suffering from cancer are screaming in pain, are most of them just faking it? Would you want a government bureaucrat in the DEA to make that decision for you and your child’s doctor?
I don’t agree with the government policy that denies people the right to take certain drugs. But I understand the logic behind these laws. I understand why some people would disagree with me.
I don’t agree with the government policy that denies people the right to practice medicine without going through an absurdly long training program, often in areas that have no relationship to their future work. But I understand the logic behind these laws. I understand why some people would disagree with me.
I don’t agree with the government policy that denies licensed doctors the right to determine appropriate pain relief. I do not even understand the logic behind these policies. I do not understand why anyone would disagree with me.
What are we doing here?
PS. Here’s an example of differential pain tolerance. Later today I’ll get a blood test. In addition, my front teeth recently shifted and now I’m repeatedly biting my lip where it’s raw. I know lots of people who would find the blood test to be painful, and wouldn’t be bothered by the lip biting. I’m just the opposite.
One more example. Since 2021, I’ve had chronic (mild) headaches. But there are no external signs that explain these headaches. So I guess they are “all in my head”. (BTW, I do not take any painkillers for the headaches, even though I could easily take over the counter medication. So don’t take this argument for deregulation of pain relief as being about me. I’m doing fine for someone of my age. The point is that doctors have no objective way of determining how you feel.)
READER COMMENTS
nobody.really
Aug 21 2023 at 3:47pm
I think each time this issue returns, I note that a 1998 Doonesbury cartoon remarked on the same problem–and noted that the last time doctors had full discretion to prescribe pain meds was 1914.
But if we acknowledge a rationale for restricting the use of certain drugs, and the rationale for requiring a license to practice medicine, is it really that hard to acknowledge a rationale for regulating the use of pain meds even under a doctor’s prescription? If anyone has an incentive to become a drug dealer, Public Choice theory might suggest that physicians are not immune to these same incentives.
Or maybe not. Perhaps the entry barrier of an “absurdly long training program” gives physicians a valuable oligopoly to exploit–a prize that they would be loathe to risk merely to become a drug dealer. So perhaps this entry barrier provides a policy benefit.
(I’ve offered this same argument regarding a variety of licensure requirements: The point is not merely to demonstrate competence–a competence that lots of unlicensed people might well share. Rather, part of the point is to provide authorities with a way to discipline bad actors through license revocation.)
Scott Sumner
Aug 21 2023 at 8:17pm
Think about what you are saying:
We have decided that only certified experts can prescribe drugs.
We have decided certified experts cannot be trusted to prescribe drugs.
Thus we’ll have unqualified DEA agents who have never met the patient second guess the doctors decision to prescribe drugs.
Sorry, but if there’s a logic to all that it’s completely over my head. Yes, a doctor might make a mistake. But we set up this system precisely because we decided a non-doctor was even more likely to make a mistake. So we’ll have non-doctors tell doctors what to do? This seems completely irrational.
They effectively have quotas. I know a 97-year old (with no history of addiction) who told me her doctor was reluctant to prescribe pain medication for serious back pain. At age 97! This is madness.
Jose Pablo
Aug 22 2023 at 9:40am
There are undoubtedly cases where that assumption is correct
Could you please name some?
Thank you
Matthias
Aug 22 2023 at 12:33pm
Eh, there are lots of stupid people. I don’t like paternalism all that much, but it’s pretty hard to argue that the bureaucrats have worse judgement than every single person.
Jose Pablo
Aug 22 2023 at 8:37pm
Well, there are lots of stupid bureaucrats/politicians too. It is pretty hard to argue that every bureaucrat/politician has better judgement than many individuals.
So, deciding which individuals have better judgement than which bureaucrats/ politicians, quickly become an impossible (and very dangerous) endeavor
I thought that by “cases” (in “there are undoubtedly cases”) Scott meant “topics or issues” in which the “government” is better placed to understand the interest of individuals than a significant number of individuals (because it has better information or lack of biases).
If the proposition meant that some individuals are stupid and so, incapable of making the best decision (the meaning you suggest) the proposition became, I think, trivial.
Jeremy Goodridge
Aug 22 2023 at 1:03pm
Hi Scott,
I have had headaches for years. For me, dehydration was the cause — I have to very consciously stay over-hydrated to avoid headaches. And if I fail, the only drug that seems to help is Excedrin. I’m not sure why. It’s just a cocktail of aspirin, acetaminophen, and caffeine. I feel like it may just be the aspirin. I have tried acetaminophen and caffeine alone and in combination and they don’t do anything. Or maybe a placebo effect?
Henri Hein
Aug 22 2023 at 2:15pm
We all react differently to different drugs. I’ve had mild migraines on and off most of my adult life. I have found Tylenol to work well and Ibuprofen to not do anything. I’ve been told by doctors that’s weird.
I’m not an expert, but I understand that even if the active ingredient is the same, the delivery mechanism can be different, and that can change how well it works.
Glenn Ammons
Aug 22 2023 at 10:35pm
And if I fail, the only drug that seems to help is Excedrin. I’m not sure why. It’s just a cocktail of aspirin, acetaminophen, and caffeine
NSAIDs (aspirin, ibuprofen, …) and acetaminophen, together, kill pain. Caffeine kills caffeine withdrawal.
Scott Sumner
Aug 23 2023 at 2:32pm
Thanks for the tips.
steve
Aug 22 2023 at 5:11pm
This topic is way too long and nuanced to easily cover. There is good evidence I believe of people having different pain tolerances. You can do the response to ischemic pain with a tourniquet and people have found pretty wide tolerances. People have looked at pain tolerance during labor. The cervix needs to expand to about 10 cm so it’s in theory a pretty similar stimulus for everyone. For most people it’s pretty painful but there is a 10%-20% group that report little or no pain. They all become LaMaze instructors. (j/k)
Alexander makes good points. We were much too liberal with opioids, which have many downsides and actually arent the best way to treat pain for many people, and now we have probably swung too far the other way. There certainly is a moralizing, accusatory approach to a lot of people with chronic pain. Part of the problem is that most people dont know how or arent willing to treat pain well. That said, his specific example is pretty awful. While I am sure there are people somewhere mismanaging pain for pediatric cancer pts that is one group where we are very unlikely to assume its drug seeking behavior.
Steve
PS- I am nto a pain doc but the pain service does report to me so I have probably done more reading on the topic than most people.
Steve
Scott Sumner
Aug 23 2023 at 2:40pm
I have known cancer sufferers who were not receiving proper painkillers. I have known kidney stone sufferers who were in the hospital and their suffering was ignored. This stuff happens all the time.
You said:
“The cervix needs to expand to about 10 cm so it’s in theory a pretty similar stimulus for everyone.”
But that tells us absolutely nothing about the pain that people experience in their brains. We are all wired differently. Some experts arrogantly assume that they know the extent to which people are suffering from pain. They do not.
Terms like “pain tolerance” imply that we know how much pain a person is experiencing. We do not.
steve
Aug 24 2023 at 1:36pm
When people have the same stimulus but report different levels of pain that suggests people have different levels of pain tolerance. Cerivcal dilation is one comparison. With the tourniquet ischemic test you put a tourniquet on someone up to a certain pressure, the same for everyone. Then you wait until they report it is painful. This can vary quite widely.
I am not disagreeing that many people have their pain treated poorly. I specifically said that many docs dont know how or dont care about treating it very much. An adult not having their cancer pain treated well and being accused of drug seeking behavior still happens, but much less than in the past. But for kids this will be rare. Sure you can find some but they will truly be exceptions. It used to be widely believed that some age groups and some races experienced much less pain so they were more likely to be undertreated. There has largely been eliminated.
I said this was complicated and dont want to write too much, but pain treatment has really advanced in the last 20 years. Pain teams work with pts to set their goals. Most pts want to retain functionality. Sometimes that means balancing towards fewer pain meds, sometimes more. We have many more interventionists so sometimes successfully avoid narcotics which really do have negative effects. Unfortunately there are also a lot of grifters in the field. Insurers pay much better for interventions than medical management which is what most people need.
Steve
Bev Schechtman
Aug 23 2023 at 12:11pm
Scott Sumner
Aug 24 2023 at 9:35am
Thanks for this comment. I wish the media would focus more on this problem, particularly the role of misguided government regulation.
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